Michael:

I‘m thankful so many people still care to ask about how Sarah is doing. Unfortunately, that leaves me fishing for an answer that’s hard to describe. The truth of the matter is: she has improved steadily since the end of ’14, but since she has good days and bad days, I’m left not knowing how to answer. If I put too much on her bad days, then I have comments saying sorry she’s gotten worse, when she hasn’t. If I post too positively, I hear some saying “I’m glad things are going so well for you” when they’re not. Let’s just say I don’t know how to respond with short fb statuses speaking of the good and the bad, yet also touching on the overall improvements.

2

A collection of Sarah’s good and bad days. Since it’s difficult to describe in words, I thought pictures could help.

Sarah told me that since she’s been vulnerable, it’s not fair to her that I haven’t been. I have my own health condition that I’ve been hospitalized with several times.

I was tested and found that I had a number of the things Sarah has which were passed onto me, along with mold from living in a mold house. I’ve had to be in a wheelchair temporarily, endure cluster seizures, experience pain that gave me no other option but to scream, and have similar tic-ing and slurring of speech that Sarah has.

There was a period of time where Sarah would hop into her wheelchair by the side of the bed to get meds for me when I was at my weakest.

The rope of three cords that was recited for us at our wedding has never been truer. When I was at my weakest, it seemed like God gave Sarah strength to comfort and care for me.

I’m typically better earlier in the day, but as it gets closer to evening, the health issues worsen. A friend of mine treated me to a movie a couple of weeks ago. Sarah warned me not to go out since it was later, but I didn’t listen. I started wobbly walking to where my friend had to catch me, then my hand began twitching uncontrollably. It was embarrassing. Even though we cannot focus on what others think, it can bug both of us since we don’t fit the norm.

As Sarah mentioned we will not see dramatic improvements until we move. I was told by a health professional that it was like being hooked up to an IV of good for you nutrients and medicines only to linger around a toxic film. In short: you might have some improvements, but you’re not going to get well.

As I mentioned in the past, in order for the mold to safely be removed, the landlord would have to pay almost what the house is worth. He’s willing to pay the minimum amount that’s required, but through readings and doctors’ warnings, we’ve been told it would most likely make the situation worse instead of better. Since housing prices dramatically increased within the last year, we know it would be a miracle to find what we need in a house, but we know we desperately need a miracle.

Our vent- Every time it's cleaned with solution to kill mold, it comes back soon after.

Our vent- Every time it’s cleaned with solution to kill mold, it comes back soon after.

I’m currently working part-time for a non-profit organization that allows me to have the flexibility I need at this time in our journey. Since the organization is still relatively new, I cannot be paid much at the time, but I have been allowed to have a tax-exempt status for anyone who gives. We are trying to raise funds that cover what we cannot pay for a safe rental house and medical expenses through this tax-exempt status. If you’re interested I’ll provide the details later. 

Even though this is a story we would never have chosen for ourselves, we have had many blessings throughout this journey, one of which is getting closer to each other.